Medicine has never been an exact science and is dependent on research and new discoveries and the incorporation of new and updated clinical and evidence-based information and innovative approaches to treatment for illnesses. (For example we no longer use blood-letting as a form of treatment for “consumption.”) Guidelines written in 2006 for a disease that is constantly evolving because of the modes of infection (including sexual transmission and via placenta from mother to baby before childbirth,) the increasing incidence of ticks and their expanding territories due to climate change, the inadequacy of testing and the lack of a vaccine for prevention of Lyme and related Tick-Borne diseases are an abomination because they are more than a decade old and obsolete yet staunchly defended by infectious disease doctors who stubbornly adhere to obsolete information and treatment and eschew any new information informed by clinical practice. New information also identifies co-infective agents (in addition to Lyme) carried by ticks and includes other vectors carrying the disease and the extraordinary survival strategies of the infecting agent (spirochetes) which can morph into a variety of forms to avoid detection.
Historically, medications and treatments for certain maladies have evolved as new information is discovered or comes forward. The IDSA Guidelines are outdated and instead of being studied and validated per clinical evidence, research and peer review, they were grandfathered in to treat a disease that keeps evolving. Standards of care must necessarily change as discoveries and new avenues of treatment evolve, necessitating updated guidelines. And guidelines certainly should not be a test to take legal action against practitioners who choose to diagnose based on clinical signs and symptoms especially since standard tests available for Lyme are inaccurate almost half the time.
The current climate of friction between societies, treatment guidelines, and the scarcity of resources for those unfortunate enough to be afflicted with Lyme that went undiagnosed and untreated and has now overwhelmed the physical body, makes it nearly impossible to get the expertise and treatment needed. Doctors who claim something does not exist simply because it is inconvenient to their standard theories do a disservice to patients who struggle with a serious illness affecting all quality of life issues. The stubborn refusal of societies to evolve, cooperate, share resources result in patients being harmed as many have opted for suicide rather than live one more day in frustration and depression because they must suffer in the background while so-called “professionals” argue over minutiae.
Doctors who are actively engaged in the clinical diagnoses and treatment of Lyme patients forgotten or dismissed by others clinging tenaciously to obsolete information, must be given a voice in the quest for controlling an illness whose incidence is growing and that left unaddressed as it is now, threatens to become a serious epidemic while overwhelming the healthcare system.